Welcome to Care4Bones

The purpose of Care4Bones is to promote quality of life for people with rare bone diseases. We are focussing on Osteogenesis Imperfecta (OI) and starting to support other rare bone diseases, too. We achieve this by providing an innovative space for networking within and across two communities: the people with rare bone diseases and the professional community caring for people with rare bone diseases. We support knowledge sharing and make collaboration on research and healthcare improvement easy. For example by hosting the Conference QUALITYOFLIFE4OI. Because the conditions we focus on are rare, we can make a huge impact by working together across the globe. Every professional with experience in rare bone diseases and every person with a are rare bone diseases is welcome! Join us now! 


Care4Bones provides two platforms: one for the professional community and one for the OI community. Other rare bone diseases will receive support starting 2024, too!

Sharing knowledge

We have exceptional talents in the professional and the OI community. Let’s share our knowledge and learn from each other.

Making impact together

We are stronger by working together. Let’s make a positive impact on quality of life for people with OI.

Join us

Care4Bones for professionals

Login to Professional portal

First time? Request to join the community here

Care4Bones for the OI-community

Login to OI-Community portal

First time? Request to join the community here